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Why do we need Invisible Disabilities Awareness Week? It’s obvious that it’s not obvious. People with invisible disabilities are not recognized as having disabilities. Accommodations are not made for them without a battle. Not...The post Invisible Disabilities Awareness Week appeared first on Chronically Content....
Why do we need Invisible Disabilities Awareness Week? It’s obvious that it’s not obvious. People with invisible disabilities are not recognized as having disabilities. Accommodations are not made for them without a battle.
Not everyone who has a disability rides in a wheelchair. Many of us with invisible disabilities have trouble with walking, shopping, doing errands, or other things that everyone takes for granted. Often, those with a disability license plate or hang-tag are verbally abused if they are seen walking from their car.
Many people come back to their car to find a hateful note, saying that the person is faking a disability because they are not in a wheelchair. There are numerous illnesses that can cause a person to need to park close to a store, without needing to necessarily use a wheelchair. Invisible disabilities could be anything that creates a physical hardship: heart disease, lung disease, auto-immune disorder, fibromyalgia, or many others.
Awareness is needed terribly in this country. The Invisible Disabilities Association is working hard to make people aware and to create better care for those of us with invisible illnesses. They have created a way to get your own Disability ID card. They are also working to get driver’s licenses with a voluntary disclosure of disability.
I have Ehlers Danlos Syndrome, Sjogren’s Syndrome, and arthritis (among others) that make it hard for me to walk very far and cause severe pain. Even though I don’t have a disabled license plate, but know that I may need to in the future. I don’t go shopping in stores because I will end up in too much pain. Or, if I do go in a store, it’s only for a few minutes.
If I were to need to shop for long, I would take my wheelchair or use one that the store provides. There are many people like me. We shouldn’t be treated unfairly just because we are ABLE to walk, but can’t walk for long stretches. If people were to understand the limits of invisible disabilities, they wouldn’t be so judgemental and rude.
One of the most frequent comments people like me hear are, “But, you look so good.” A lot of people think that it’s a compliment, but in reality, it’s a way that people dismiss your suffering. Many people think that if you’re truly sick, you will look sick. This is just not true. Many days people like me are staying home because they feel so bad.
When we venture out, we try our best to look good. We put on makeup and fix our hair. It’s not that we want people to feel sorry for us. We are hiding our illness as best we can. So, it’s very unfair for someone to then accuse us of faking it. We aren’t faking being sick. We are faking being well.
If you would like to find out more about the Invisible Disabilities Association and how they can help you, read more HERE.
@2020, copyright Lisa Ehrman
Covid has now touched my family. My mother has a mild case and so far hasn’t had any symptoms to speak of. I’m very thankful that she’s been doing so well. And, my father...The post It’s Hard To Relax appeared first on Chronically Content....
Covid has now touched my family. My mother has a mild case and so far hasn’t had any symptoms to speak of. I’m very thankful that she’s been doing so well. And, my father isn’t showing any symptoms. I was with them a lot, but was wearing a mask.
I’ve quarantined all week and was finally able to see my grandchild. Today seemed extra special, because I was able to get out and be with family. Although I can’t be around my parents, I’m not showing any problems. And, my negative test was a relief.
I’ve felt so much stress this past week! It’s hard to worry about your aging parents and whether or not I was exposed. There doesn’t seem to be an end in sight, and it’s so hard on everyone. It’s especially hard on families who live far apart. There’s still a risk to travel and visit.
Many people are recommending that the holidays be spent at home, instead of traveling to be with extended family. All this makes sense, but I don’t know what I will do this year. I want to just throw caution to the wind and live my life. But, with all of my health problems, it’s just not wise to take that approach.
I also am worried about my health insurance. With the Supreme Court hearing the ACA case the week after the election, my fears are very near. Without the insurance through the ACA, I won’t be covered. With all of my pre-existing conditions there just won’t be a health insurance plan available to me.
Thankfully, my husband has medicare and my son is insured through his graduate school program. But, I’m the one who has very expensive health needs. My medical bills could definitely break us, financially.
I try to not worry, but my anxiety is raging. I’m trying to focus on the beauty of fall and the good things in my life. But, I have this fear in the back of my mind. I’ll just try to keep praying for strength to deal with all the bad things that may come my way. Only God can provide for my needs, so I’m trying to trust Him.
2020 certainly has been a year of ups and downs. The roller coaster life of chronic illness has made it more stomach-turning. I just hope and pray that we can all get through this and not have such suffering and worry.
I’m often thinking about doing more self-care actions, but haven’t really followed through with them. This evening I’m working on relaxing. It sometimes takes a lot of work to relax, if you know what I mean. I have to consciously tell my muscles to relax, my shoulders to fall, and my breathing to slow down .
It feels good to practice self-care. I know I need it, and you probably do, too. So, no matter what you’re facing, please take care of yourself. Relax in the tub, light a candle, breathe, or whatever works for you. God bless.
@2020, copyright Lisa Ehrman
Disclaimer: I’m not a medical expert. This post contains my opinions and is not meant to be taken as medical advice. If you have a medical concern, please consult your personal physician.
Today was Covid-19 testing day. My mother was directly exposed and my dad and I were exposed to her. She found out on Tuesday that she was with someone who had it on Monday,...The post Covid appeared first on Chronically Content.
Today was Covid-19 testing day. My mother was directly exposed and my dad and I were exposed to her. She found out on Tuesday that she was with someone who had it on Monday, and thankfully, I wasn’t there. Although I spent time with my mom this week, I was fully masked and not exposed.
I got tested and was negative. I did get antibiotics for an upper respiratory infection. The doctor said that having my cold or allergies bothering me for a couple of weeks was causing my body to need some help. I am so thankful that I wore my mask all week.
The reason I was very careful to wear the mask was because I didn’t want to infect my parents. They are both 84 and in poor health. My mother is frail and has Diabetes. I am now very worried about her. She has no symptoms yet, thankfully.
I will now be praying for her and for my dad who doesn’t wear masks. I hope that he’ll change his mind. I’m so sad for her.
What started as such a perfect fall day with no clouds in the blue sky, is now such a cloud-filled day in my heart. All I can do for her is to pray.
So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.
@2020, copyright Lisa Ehrman
I’ve begun to have worsening symptoms the last two days. Today, I’m trying to tell what is going on with my sinuses. It has seemed like allergies, but I’m not sure. Is it allergies,...The post Allergies, Cold, or Covid? appeared first on Chronically Content....
I’ve begun to have worsening symptoms the last two days. Today, I’m trying to tell what is going on with my sinuses. It has seemed like allergies, but I’m not sure. Is it allergies, a cold, or covid? I threw in the Covid question, because why not?
Whenever I start getting a stuffy nose, I always try to decide if I’m contagious. If it’s just allergies, I don’t mind being around other people. If it’s a cold, then I’m not wanting to spread the cold to other people. Colds are SO contagious!
I was around my grandchild, who had a cold all last week. So, I could have been exposed there. But, I’m also staying for an extended visit in a new state. I’m living on a farm with lots of trees that I’m allergic to. There’s also lots of hay and goldenrod in the field. I just happened to walk the dog near it.
Since I don’t have any fever or body aches, I’m leaning more toward allergies. I also have itchy eyes and throat, which points to allergies. My energy level is steady, so that’s another sign that it’s probably allergies.
But, I still don’t want to be around people. No one wants to be around a person who’s sniffling and blowing their nose all the time. I didn’t talk much about covid, but I definitely don’t have shortness of breath, much coughing, or fever.
This great chart from the American Academy of Allergy, Asthma, and Immunology can make it easier to decide which category your symptoms may fall into.
Of course, this isn’t the same thing as a doctor’s advice. So, if you feel bad, you should check with your doctor. Only he can do appropriate diagnosis and testing to see what you may be dealing with.
If you do feel bad, and I hope you don’t, I certainly hope that you are better soon. No one wants to have allergies, a cold, or covid, especially since you already have a chronic illness to fight. Everyone take care of yourself and have a wonderful day!
@2020, copyright Lisa Ehrman
Disclaimer: I’m not a medical expert. Nothing I post is meant to be taken as medical advice, but is only my opinion. If you have a medical concern, please consult your personal physician.
Yesterday was the first time in over seven years that I was present to help celebrate my adult daughter’s birthday. It was a wonderful party and I was able to host it for her....The post Celebrate appeared first on Chronically Content....
Yesterday was the first time in over seven years that I was present to help celebrate my adult daughter’s birthday. It was a wonderful party and I was able to host it for her. Her grandparents were able to attend, along with her husband and little one. We had a roaring good time.
It took me two days to clean, decorate, and cook everything for the event. I made a gluten free cake, gluten-free and dairy-free rolls and a large spread of food. I decorated with some balloons and streamers. I’m staying in a family-owned barn loft, which is absolutely charming.
My dad made it just right for my arrival, by replacing some of the worn-out features, such as carpet in the bedroom. The very old barn was turned into an apartment years ago by my sister, who’s an architect.
The wood walls are from trees nearby and the rustic pine floors from wood on the family farm. It’s very open and delightful to live in while I’m visiting. The utter quietness of the country is only disturbed by the occasional acorn dropping on the tin roof.
We love Him because He first loved us. I John 4:19
While getting ready yesterday, my face turned bright red and I was experiencing hot flashes. I actually had to take two showers and still was sweating. I’m guessing this was a mast cell attack. I was really pushing myself and my allergies are bad.
When everyone left, I collapsed on the couch and soon went to bed. The dishes would have to wait. My throat is hurting today, but it feels like it’s being caused by allergy sinus drainage. I’m hoping that this is allergies and nothing more dangerous.
Instead of visiting with family today, I’m doing nothing. I can only rest on the couch and try to relax. Every joint and muscle is aching. I’m so tired! I’m really glad that I could pull it off yesterday because it was wonderful and I’ll have this memory forever.
We all laughed, played games, watched the little one, and ate lots of food. I hope that I can do this again next year. But, now I’m going to rest.
@2020, copyright Lisa Ehrman
It’s a stormy day here in the deep South. I’m in the path of the remnants of Delta, that has brought severe rain and wind. The metal roof has kept me awake much of...The post Delta appeared first on Chronically Content.
It’s a stormy day here in the deep South. I’m in the path of the remnants of Delta, that has brought severe rain and wind. The metal roof has kept me awake much of last night, because of all the noise. Acorns and twigs are hitting and the wind is ferocious out there!
I love storms and the beauty of dark skies, as long as no one gets hurt. Then, there’s the problem of pain. I’ve been visiting my family here for a few days and have been driving and moving much more than when I’m at home.
My pain has been steadily increasing and today it is off the charts! The storm system makes things worse, too. I can’t walk without grimacing and my eyes are so swollen! And, of course, I’m hosting my daughter’s birthday party here tomorrow.
I’ve already been taking too much Advil this week. I may have to take more today and use the heating pad while I’m stirring the cake. I will truly never, ever learn to pace myself.
Even with the huge improvement in my energy levels (thanks to LDN), my pain is NOT under control. It’s not under control at all.
The joy of being with family is still worth it, but I’m so sad that I can’t function better than this. No one in my family really understands it. There’s no way for them to understand it, unless they are also suffering.
I pray for all of us in the path of this storm. Praying for safety and pain relief. I hope you all have a wonderful weekend.
@2020, copyright Lisa Ehrman
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