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Bothering, Demanding, Nourishing, Telecommunicating, and Tolerating are the prompts for July with A Chronic Voice’s July Linky. I’ll be contributing, along with many other great bloggers who write about chronic illness. Each month we...The post July Reflections appeared first on Chronically Content....
Bothering, Demanding, Nourishing, Telecommunicating, and Tolerating are the prompts for July with A Chronic Voice’s July Linky. I’ll be contributing, along with many other great bloggers who write about chronic illness. Each month we have a new set of words to inspire us to write about how chronic illness affects us.
July was just another month on the calendar that convinced me, yet again, that this year is flying by. 2020 has been a month filled with ups and downs. With the coronavirus, the downs have definitely outweighed the ups. Living through months of quarantine isn’t easy, but I still will count my blessings. I’m thankful that my family hasn’t contracted the virus.
One thing that I’ve not been bothering to do is wear real clothes. There have been too many days that I haven’t bothered to change out of my pajamas. Hubby has joined me in this bad habit. Even my college guy wears pajamas many days. He doesn’t feel like dressing up for online classes. We all look like bums!
Because of being stuck at home for so long, family members can really get on each other’s nerves. Some days it doesn’t take much to annoy each other. Thankfully, we haven’t gotten bitter or mad. Demanding to have things my way isn’t a good thing, especially now. We all need to be less demanding in our homes. Being more patient than usual is really needed to keep our homes peaceful and loving.
Nourishing our bodies and minds is something that I need to improve on. Because I don’t feel like cooking, my diet hasn’t been very nourishing. To help my body do the best it can do for healing I need to eat a very nutritious diet. Nourishing my mind could be improved by turning off the television more and replacing some of my wasted time with listening to soothing music or reading my Bible.
Telecommunicating has become the norm. We try to replace face to face meetings with zoom or face-time. I’m thankful that most of my doctor’s appointments have been on zoom. It’s easy to stay at home and just talk to my doctor. I have two zoom appointments set up.
I’m very sad that I can only speak to my children and grandchild by phone or text. I miss them so much, but don’t feel like it’s safe to travel. I miss hugging my kids and seeing them face to face. I pray for the day when I visit them and hope that it will come soon. But, I must be willing to sacrifice my wants right now.
Tolerating is an important word! I find it hard to tolerate some things. The virus has caused many people to be intolerant of face masks and lockdowns. Some people don’t want to be told what to do, but that shouldn’t be the issue. We should be willing to protect each other. Many of us don’t have strong bodies that can withstand covid-19, and I believe that we should all care about our fellow man.
Tolerant thinking shouldn’t be a political issue. Caring about each other and the vulnerabilities of others, is actually pretty easy. Wearing a mask is a little uncomfortable, but can’t we all tolerate a little discomfort to save a life?
I think the July prompts are very easy to write about during this crazy time in our world. The best thing that I can do when things feel the most distressing is to unplug and spend time in prayer. I know God is hearing and answering prayer, and I pray for my family and you dear readers. Please take care.
Love is patient and kind; love does not envy or boast; it is not arrogant or rude. It does not insist on its own way; it is not irritable or resentful; it does not rejoice at wrongdoing, but rejoices with the truth. Love bears all things, believes all things, hopes all things, endures all things. I Corinthians 13: 4-7
@2020, copyright Lisa Ehrman
Disclaimer: I’m not a medical expert. My opinions in this post are not to be taken as medical advice. If you have a medical concern, please consult your personal physician.
My return visit to the new holistic clinic gave me so much information! The doctor gave me an overview of the treatment plan he had for me. Today, I spent an hour going over...The post A New Treatment Plan appeared first on Chronically Content....
My return visit to the new holistic clinic gave me so much information! The doctor gave me an overview of the treatment plan he had for me. Today, I spent an hour going over the general outline of how he’ll start treating my chronic pain, MCAD, heart, fatigue, and more.
The goal in all the treatments is to reduce overall inflammation, change my diet, and hopefully replace some of my medications with natural herbal treatments. Before anything is changed, there are some tests to take. I’ll have fasting blood work and other tests.
I admit that I don’t fully understand all the things that he discussed with me, but there will be more time for questions. I’ll also start reading studies online about some of the terms that are unfamiliar to me. I was glad that many of the things he mentioned were familiar to me.
I’ll continue to take LDN (low dose naltrexone) and he said that the dose might be changed at some point. I was given one supplement to start taking and have ordered two more that he has prescribed. All of the treatments are offered voluntarily, but I plan to give all of these things a try. What do I have to lose.
It’s pretty exciting to have an appointment with the nutritionist. I’ll see her in a little over two weeks, and I expect huge changes in my diet. I’m to fill out a long survey online and more paperwork. The individualized plan will need to take into account all of my allergies and chemical sensitivities.
The changes are meant to reduce inflammation throughout my body, and he wants to treat the gut before spending too much money on gut testing. He wants to improve it proactively. There are definitely things that are going to be cut from my diet. I just hope that I don’t get worse before I get better.
Well, I’m learning as I go. But, it’s a relief for me to have a holistic doctor who works with natural and traditional treatments. It will be fun to share more details as I learn them. I’m certainly ready to try these methods to focus on my overall health and pain relief. It’s an exciting and nerve-wracking adventure. But, all chronic illness is a scary adventure.
@2020, copyright Lisa Ehrman
Disclaimer: I’m not a medical expert. I’m sharing my opinions and this is not meant to be taken as medical advice. If you have a medical concern, please consult your personal physician.
Now that I’ve started to have Mast Cell Disorder events daily again, I’m taking Benadryl on a regular basis. These MCAD events have been worse than the series of events I had before my...The post What Is My Brain Up To? appeared first on Chronically Content....
Now that I’ve started to have Mast Cell Disorder events daily again, I’m taking Benadryl on a regular basis. These MCAD events have been worse than the series of events I had before my dose pack of Prednisone. This series of events includes hives and welts. This worsening of symptoms worries me. This morning at 4 AM, I was awakened to strong smells. The sweet, floral scent didn’t match any scent in my room.
I was afraid that I was just dreaming, so I sat up and bed and the smell was still strong. I removed my CPAP mask and got up. After I walked around the room for a few minutes, looking for the source of the smell, it faded away.
This wasn’t the first time I’ve had non-existent smells that were strong. Years ago, I would smell what I described as wires or electrical burning. I would be afraid that the house was on fire, and would search everywhere. There was never any fire. There have been other times when I smelled cotton candy. This would be such a strong scent, but I knew that there wasn’t any cotton candy in my house.
These events were so weird and the smells so overwhelming that they couldn’t be ignored. I’ve talked to doctors about these before. They weren’t sure what had caused them, but said that they could be related to migraines or seizures. I had a neurologist who believed that I was having seizure activity, but could never get proof. The two EEGs that I had were negative.
When you combine all of this with the DeJaVue events, these could be a signal of Temporal Lobe Epilepsy. The smells that don’t exist can be called Phantosmia or Olfactory Hallucinations. They can be caused by severe sinus infections, brain tumors, epilepsy, or Parkinsons.
I don’t like reading this type of information, because I don’t want to have any of these things. I know that I haven’t had a sinus infection in about two years. And, the other diagnosis types are really bad. I don’t want any of those. But, my experiences are real and I can’t deny that they’ve happened. Thankfully, these don’t happen often.
Since I’ll be meeting with my new doctor on Monday, I’ll discuss this with him. Whatever is the cause of these events, I just want to make sure that I’m getting proper treatment. When you have so many medical conditions, the overall picture of my health is complicated. I hope that my new doctor can introduce me to some holistic treatments that could replace some of my drug treatments.
Although there are always problems that can’t be fixed, I must continue to be hopeful, pray, and fight for better days.
@2020, copyright Lisa Ehrman
Disclaimer: I’m not a medical expert. This post contains only my opinions, and is not meant to be taken as medical advice. If you have a health concern, please consult your personal physician.
My husband and I have had a stressful and frustrating experience as we’ve tried to make decisions about getting out of the house during Covid-19. With my numerous medical conditions there is a worry...The post Chronic Illness Covid Decisions appeared first on Chronically Content....
My husband and I have had a stressful and frustrating experience as we’ve tried to make decisions about getting out of the house during Covid-19. With my numerous medical conditions there is a worry that I’ll have a worse outcome if I contract this virus. My husband is 73 and has some health worries, too. Trying to decide what risks we want to take has been so hard.
Since March, we have only left the house to pick up groceries. I have been inside a doctor’s office twice. We take every precaution possible with masks, hand washing, and even changing clothes after we’ve gone out. While many are very comfortable going on about their lives, we have made the choice to stay home.
I don’t allow any political discussion on my blog, so please don’t get into that area of conversation. To me, Covid-19 is nothing more than a serious novel virus. Everyone is allowed to make their own choice pertaining to their own body. I feel very comfortable in having stayed home this long. I don’t know exactly when I’ll want to relax my standards.
In our area, cases are on the rise. We also live with a college student and worry about what he may bring home with him in the fall. But, our most immediate worry is that we can’t see our grandchild. Two of our adult children live many states away from us and we are so eager to see them.
We haven’t decided when we’ll go, but think about it all the time. I’m sure they’re fine without us, as all of us aging parents understand. I hope and pray that it won’t be a very long time before a visit can happen. We know that Covid-19 won’t be a threat forever and that’s something to continually remember.
I have a new treatment plan appointment next week. I’ll go in in person to see the doctor, but they are practicing with every precaution. This local appointment is something that I’m excited about, but also nervous about. My new LDN (low dose naprexone) is still not helping at all with pain or fatigue. I wonder if the two week mark will finally bring me to a point where I can feel a difference?
There’s no way to know, but I’m still hopeful. I hope and pray that LDN will be a game-changer for me. The doctor said it might even help some with Mast Cell activation. I hope so, but today I’m having an increase in itching. It looks like I may need to start taking additional doses of Benadryl. Ugh! I hate it, because I’ll be more sleepy than I already am.
I’m continuing to pray and trust God that His plan for me is good. The peace He gives is enough. The inner strength will now need to suffice, even when the physical strength is gone.
Seek the Lord and His strength; seek His presence continually – I Chronicles 16:11
@2020, copyright Lisa Ehrman
Disclaimer: I’m not a medical expert. This post contains my opinions, and is not meant to be taken as medical advice. If you have a medical concern, please consult your personal physician.
Well, today is day 4 of my new LDN treatment. My new doctor told me that the first three days I would feel nothing. That is very true. Then, he said, on the 4th...The post Discouraging Treatments appeared first on Chronically Content.
Well, today is day 4 of my new LDN treatment. My new doctor told me that the first three days I would feel nothing. That is very true. Then, he said, on the 4th day….BOOM! I would have a great pain reliever and less fatigue. Well, guess what? Nothing. This is why having chronic illness and chronic pain is so discouraging. It seems like all the treatment promises are worthless.
I did wonder if the hype was true. I did wonder if it would work for me. So far, nothing has worked for me. The CPAP didn’t give me more energy/less fatigue. The Cymbalta and Plaquenil have not given me less pain or fatigue. The Mast Cell drugs have not given me less reactions or rashes. The Metoprolol hasn’t stopped my heart palpitations or shortness of breath.
The Vitamin D hasn’t prevented my low D levels. The Vitamin B shots didn’t give me more energy. What is the deal? Am I broken beyond help? Who knows. But, I keep taking all this stuff until my new doctor can get some alternative treatment that actually helps me feel better.
Since I started taking LDN (low dose naltrexone) I’ve taken the time to read what people are saying about it in forums and have also read what foundations have said about it. Generally speaking, most people start at a much lower dose than me and very gradually increase the dose. My doctor mentioned this to me, but said he has better results with starting at 4mg.
Many things I’ve read online have said that results won’t be noticed before 1-2 weeks. I’m going to hang onto hope with this information. I can certainly wait that long to test this medication. Others online have said that it could be up to 6 months before the full effect is noticed. That sounds terrible.
I’ve tried many medications that make you wait 6 months before the results are noticed. This is so cruel! Every day with severe pain and fatigue is unbearable. When we as patients are given one false hope after another, waiting even one day is too cruel. Unless you live with these chronic conditions there is no way for you to understand. The never-ending carrot being dangled in front of our nose is cruel.
We need help. We need treatments. And, we need care. Real health care would bring about better research and treatment improvements for those of us who suffer chronically. Instead, chronic pain treatments are vilified and taken away from people who suffer from pain that prevents them from having any kind of functioning life.
I truly hope that the LDN will start to work. Living with less pain and fatigue seems like such a dream to me. It’s like one of those wonderful dreams that is only found when I’m in my deepest sleep and disappears when my alarm goes off. I reach out to grab my dream and poof….it’s gone.
@2020, copyright Lisa Ehrman
Disclaimer: I’m not a medical expert. Posts contain my opinions and are not meant to be taken as medical advice. If you have a medical concern, please consult your personal physician.
Disclosure: Affiliate links may be included. Clicking on links doesn’t cost you a cent, but making a purchase could help to support this blog. If you like to listen to experts in the health...The post 4 Upcoming Health Webinars appeared first on Chronically Content....
Disclosure: Affiliate links may be included. Clicking on links doesn’t cost you a cent, but making a purchase could help to support this blog.
If you like to listen to experts in the health field, there is a way to learn and view from home. There is also no charge to watch these health webinars. Each day’s sessions are live for that entire day. So, you can watch them any time of day that suits your schedule. If you miss a day, there is always an encore weekend after the summit is over.
The webinars are available for sale, but it isn’t something that is necessary. You can watch them all for free! I’m going to show you the latest summits, in case there is one that is interesting to you. Feel free to share this opportunity to any friends or family that you think might benefit.
The Mind, Body & Vagus Nerve Connection Summit (June 15-21, 2020) will help you understand: The location and many functions of the vagus nerve + How to measure vagal tone + Symptoms and root causes of vagus nerve dysfunction + The role of chronic stress and emotional trauma + Impacts of toxins, infections & EMFs + How to strengthen vagus nerve function + Physical and mind-based approaches + And so much more!
The Leaky Brain Summit (June 29 – July 5, 2020) help you: ● Identify symptoms of leaky brain ● Understand the brain-immune-gut connection ● Reduce inflammation to help heal leaky brain ● Overcome pain, trauma and stress ● Detox and regenerate your brain ● Master your mindset to optimize brain health ● Know which foods to choose or avoid ● Help children avoid mental health disorders ● And more!
Superhuman Energy Summit ( July 13-19, 2020) will help you learn:
The Holistic Oral Health Summit (July 20-26, 2020) will show you:
If these Health Webinars are interesting to you, I hope that you’ll sign up. There is no charge at all to watch and learn. Each summit that you register for will come with absolutely free gifts of ebooks, cookbooks, and more. The summits are available for purchase, but you are under NO obligation to make any purchases. I hope that you’ll enjoy these. I hope to serve you by sharing these types of opportunities with you.
@2020, copyright Lisa Ehrman
Disclaimer: I’m not a medical expert. This post contains my opinions and experiences, and is not meant to be taken as medical advice. If you have a medical concern, please consult your personal physician.
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