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How did you make it yesterday? I hope you all had a peaceful Thanksgiving and made some new memories. Because it’s 2020, we had some different memories. We didn’t really celebrate the same way... The post Making Different Memories appeared first on Chronically...
How did you make it yesterday? I hope you all had a peaceful Thanksgiving and made some new memories. Because it’s 2020, we had some different memories. We didn’t really celebrate the same way that we usually do, but it was still nice.
Our small family celebration was quiet and calm. Because hubby had helped me by cleaning up dishes, chopping and stirring, I was able to cook our meal. It always makes me feel better if I can prepare the recipes that my family expects as part of our traditions.
My husband always wants oyster dressing. My children always want homemade rolls and garlic cheese grits. We also had turkey, of course. Everything turned out well and tasted good. Thankfully, I didn’t burn anything.
Even though the celebration was smaller than usual, it didn’t make my pain any smaller. My pain was and is severe. I went to bed in pain and nauseated. Eating heavy food hurts my stomach. All my joints in my hips, legs, feet, and toes are throbbing. My spine is slipping.
My eyes are more dry than usual and hurt. My skin is broken out and itchy. So basically, preparing a big meal does my body in. Even with pacing there is a pay day for doing this much work. I am paying for it by: not sleeping last night, having nightmares and waking up screaming, having very blurry vision, pain, and terrible brain fog.
Today has been a day that I never changed out of my pajamas. I’ve been curled up on the couch with a blanket and my dog. When we over do it and pay day comes, there’s nothing else to do but rest. In a day or two, I’ll forget about how bad I felt (hopefully).
Since it was Black Friday I did a bit of shopping online. I was able to get a few good deals and ordered quite a few of the presents I need to buy. With shipping at a slower speed than other years, I want to get my shopping done pretty quick. I will need to ship a few boxes to family that are far away, and don’t want them to be late.
How are you doing? Are you having a pay-day? I hope not. But, if we’re living with chronic illness, pay days are just part of our life. Even though I hurt, I’m still thankful that I was able to be a blessing to my family yesterday.
@2020, copyright Lisa Ehrman
Psalm 100:4-5 Enter his gates with thanksgiving and his courts with praise; give thanks to him and praise his name.For the Lord is good and his love endures forever; his faithfulness continues through all generations. It’s Thanksgiving week! The Christmas boxes and... The post With Thankfulness appeared first on Chronically...
Enter his gates with thanksgiving
and his courts with praise;
give thanks to him and praise his name.
For the Lord is good and his love endures forever;
his faithfulness continues through all generations.
It’s Thanksgiving week! The Christmas boxes and decorations are unpacked and the tree is decorated. Even though it’s a little early to get ready for Christmas, I wanted our home to be cheerful. And, there’s nothing better than Christmas decorations for creating a warm and cozy ambiance.
We put up our full-size tree downstairs and a small one upstairs. I unpacked a lot of my cute decorations: large angels and the nativity scene as well as some cute snowmen and a moose. Last year we planned to travel for the holidays, so we just put up the bare minimum of decorations. It was pretty bland.
But, last year, I didn’t have LDN to help my energy and I had basically none. I’m very thankful to have my first holiday season in years in which I actually had the energy to get up and decorate and cook. What a difference! I don’t have to pretend or put on a good act to cook and visit with my loved ones.
It’s so hard to do the things we want to do when we have chronic pain and other symptoms. Although my pain levels are still bad I can still enjoy all of my chores because I’m not dragging. With LDN, I can actually pace myself. Before, I tried to pace myself, but the body just couldn’t do it.
It’s been such a blessing to have this drug! I could unpack one box of decorations and then rest for an hour. Then, I could get up and do it again. I never could do this before. LDN (low dose Naltrexone) is a lifesaver!
Devote yourselves to prayer, being watchful and thankful.
I am still going to have hubby help me clean up and cook this year, but it won’t be quite as much. He’ll also not have to listen to me moan quite as much from the pain and struggle just to stand up in the kitchen. I’ll never be well, but having the help from this one drug has been a total game-changer.
Now, if my body can just stop having allergic reactions, life will be good. Just when I think that I’m past the cycle of reactions, my mast cells go crazy and I’m back on Benadryl. Sunday, I was so nauseated I could hardly move. I just rested and tried not to throw up. I took a lot of Benadryl and only could eat crackers.
I’m hoping for a break from this so that I can eat pumpkin pie on Thursday! Oh, and of course, I need to feel good enough to bake it. I hope and pray that you all have a low-pain and higher-energy Thanksgiving. Although our meal will be for just the three of us, I’m thankful that we have the resources to buy good food and have a warm, safe place to live.
I will praise God’s name in song
and glorify him with thanksgiving.
@2020, copyright Lisa Ehrman
Have you been planning your Thanksgiving? I’m staying home this year. It’s just not a good idea to travel. I haven’t wanted to think about how much I’ll miss the kids, but it happens... The post Planning To Smile appeared first on Chronically...
Have you been planning your Thanksgiving? I’m staying home this year. It’s just not a good idea to travel. I haven’t wanted to think about how much I’ll miss the kids, but it happens anyway.
Our oldest lives so far away that we would have to stay every night in hotels. With my health, this is not happening. My other adult child lives a little closer, but I’m still not comfortable. My body is barely holding steady and I don’t feel that I could handle covid.
So, even though I’ll really miss them it’s going to be okay. I do plan to get the vaccine as soon as I can. Then, I want to visit them until they run me off. My grandmother name is Mimi and I look forward to hearing the grandson say it over and over!
Food is the highlight of Thanksgiving. When I’m only feeding the three of us, I don’t usually cook every single traditional dish that my family is used to. But, I just asked hubby and our youngest which dishes could they not live without.
They told me just what I thought that they would: Homemade rolls, Oyster Dressing, Turkey, Pumpkin Pie, and Grits Cheese Casserole. Oh, and don’t forget “cranberries shaped like a can” (from Earnest Saves Christmas).
We found the smallest organic turkey in town, which is still 12 pounds! Ugh! Now, if I can only survive brain fog and start thawing it in the fridge on Sunday.
Cooking and baking is one of my favorite things in the world, but thanks to all my chronic pain I rarely do it. But, on Christmas and Thanksgiving I bake anyway. I end up using lots of ice packs, heating pads, and begging hubby for back rubs.
That’s my tradition….having a really painful back. But, I really wouldn’t change the holidays for anything. We usually put up the Christmas decorations starting on Thanksgiving night. This year, like many of you, my tree is already up.
I’m decorating a few minutes every day until this is done. So far, I’ve put the tree together and put all the lights on. That’s a pretty big deal for me. My back was really hurting and the last few days my left knee keeps going out.
I’m really feeling joyful about passing down traditions to my children. This year my daughter-in-law asked for my Grits Cheese Casserole recipe. And, my daughter asked for the recipe for my homemade rolls. So, even if I can’t be with them, they’re making a dish that I always made for them.
It’s giving me such warm feelings just knowing that they want to keep some of the traditions going that they enjoyed as children. It’s a beautiful thing when families can share traditions to the next generation. That will keep me smiling all through this upcoming holiday season.
@2020, copyright Lisa Ehrman
Yesterday I was in anaphylaxis most of the day. I had to take three doses of Benadryl and had my Epi-Pen on stand-by. I came so very close to using it but was thankful... The post Anaphylaxis Time appeared first on Chronically Content.
Yesterday I was in anaphylaxis most of the day. I had to take three doses of Benadryl and had my Epi-Pen on stand-by. I came so very close to using it but was thankful that I didn’t. Anaphylaxis is so frightening and it’s hard to know if the Epi-Pen should be used. When I’ve passed the point of blacking out, the needle goes in.
After all the sickness, I lost three pounds (the hard way). This morning I feel so weak. I’m shaking and my vision is very blurry. Part of this is from the Mast Cell Activation Syndrome side-effects. Some of the side-effects come from high doses of Benadryl. I don’t handle this drug well.
Having Ehlers Danlos Syndrome and Mast Cell Activation Syndrome together is common. Mast Cells are part of the immune system. This information from the Ehlers Danlos Society says:
Mast Cells, Connective Tissue, and Mast Cell Activation Disorder “Cells of the body are surrounded and supported by a network called the Extracellular Matrix (ECM), which can be made from structural materials like collagen. Structural materials like collagen play an important role in the connective tissue of the body generally, and are associated with the Ehlers-Danlos syndromes (EDS). MCs can stick to the ECM, which in turn alters their behavior. EDS, as a connective tissue disorder, could change the ECM enough to cause a change in MC behavior.”
I’m feeling that my stomach is still not happy and my allergic reactions and anaphylaxis always starts there. I’ll be eating bland foods today, like white toast or a potato. These reactions don’t leave me able to pick up and be back to normal as soon as they’re over. The effects linger and sometimes set me up into a cycle of reactions.
I pray that this won’t happen today. Having ongoing reactions is a nightmare for me and my husband, who checks on me every few minutes to make sure that I don’t need a Epi-Pen shot. Nobody slept much last night. When I did sleep there were horrific nightmares. That’s one thing that I hate about Benadryl.
I sometimes have anaphylaxis from known issues, such as chemical sensitivities. But, I also have had just as many times with idiopathic anaphylaxis. This is even scarier, because I don’t know what caused it and have no way to prevent it.
To learn more about Mast Cell Disorders you can read HERE.
Disclaimer: I’m not a medical expert. This post contains my experiences and opinions and is not meant to be taken as medical advice. If you have a medical concern, please consult your personal physician.
@2020, copyright Lisa Ehrman
This has been a week of worrying. My dad has covid and pneumonia. He has been in and out of the hospital. He doesn’t want to stay and leaves as soon as he feels... The post A Week Of Worrying appeared first on Chronically Content.
This has been a week of worrying. My dad has covid and pneumonia. He has been in and out of the hospital. He doesn’t want to stay and leaves as soon as he feels better. But, then he gets so bad that he has to go back. It’s been very stressful, because I’m just hoping that he’ll recover.
Being far away from elderly parents is hard. And, when you add covid into the mix, it’s really impossible. It’s also just hard trying to deal with all of my chronic illnesses with all of this extra worry and stress.
My overall pain has been a little bit lower, and I’m thankful for any help that I can get. I still have daily pain that keeps me down. Being able to do the dishes or clean up a little makes me have more pain. It’s all a matter of pacing, and you know I’m not good at that.
But, because I have the rest of my life to get better at pacing, I just keep trying to improve. Pacing is the answer to preventing serious stabbing pain. After the dishes, I must use my massage tool. It feels so good behind my back or neck.
I saw my doctor yesterday and we talked about all my new bumps and worries. I had almost forgotten about how he gave me Lidocaine injections during my last visit. It was exciting to get more injections in my shoulder/neck area. There were about 10 injections and I looked forward to a lot of pain relief.
I felt a little bit of relief immediately after the injections. But, when I got home, I was very tired from the appointment and my pain was bad. Throughout the evening, I felt pain relief in the area of the injections. But, lower in the back and hip I was hurting a lot. Late in the evening I gave in and took Advil. At least, I was able to sleep well.
It’s weird how a treatment might feel helpful one time and not really do much the second time. Living with Ehlers Danlos Syndrome is such a roller coaster. We don’t have the same symptoms every day and our pain can be all over the place.
I continue to have slipping around of my disks on a regular basis. Sometimes they only shift when I’m stretching the spine, but often they just randomly shift for no apparent reason. Over time, I worry what will happen as this continues to happen.
When there is no acute problem or new scary symptom, I’m just thankful. I’m thankful I didn’t catch covid, so far. We’ll just keep quarantining and praying. I hope and pray that you are well.
@2020, copyright Lisa Ehrman
Welcome to the Senteq Injury Products Giveaway! 1 Winner Senteq Injury Products This giveaway is part of our Holiday Gift Guide – Stop by to see all the giveaways and great products. HOST IS... The post Senteq Injury Products Giveaway appeared first on Chronically...
This giveaway is part of our Holiday Gift Guide – Stop by to see all the giveaways and great products.
This giveaway prize can be very helpful to those of us who may need occasional bracing. Good luck to all who enter.
This giveaway’s Sponsor is:
1 Winner receives the Senteq Injury Products shown below.
Senteq always strives to prioritize human health and well-being by integrating current technology on its products. Senteq believes that people gain optimum happiness and real enjoyment once they start intentionally taking care of their bodies. This is why SENTEQ puts effort into developing health, fitness, and protective gear– to enhance every person’s happiness and wellness,
$107.50 ARV plus shipping
See review HERE.
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